Thank you to everyone who left a comment on my last EYE post. I was reading them and am really touched at all of the people we have on our journey. :)
To the imum who left a comment, WELCOME to the club! It is not the most glamorous club in the world, but we love and support each other, even though we have never met. I think we definitely were missing a European counterpart! If you are interested in chatting EYEs, please email me-melissaglover8@hotmail.com.
Also, I know how you feel about thinking this is your fault. It is not, I promise. I, also, blamed myself for the cataract because it happened while I was pregnant. Had a little breakdown on my bedroom floor with my sister and husband trying to convince me I was wrong. They were right. The cause is random and unknown and had nothing to with anything I did. BUT...on the same page, all of those sweet, precious, perfect things your baby does...yep, those are all you! Hang in there, it will be ok.
iMUM! WHAT!?!? You know I am about to go and find her comment.
ReplyDeleteI love that I was also in the bedroom during the breakdown. I remember that. :(
The perfect stuff is totally all from you being awesome.
This is a really sweet post... it is truly amazing how much love and support I feel from people I have never met. I honestly do NOT know how I would be doing this EYE thing without my cyber ifamily?!!! I was sad that OeyeO didn't work out this year, but it will in the future I'm sure! Seeing that you went back to work on Monday after the weekend we originally planned... that would have just been crazy, not to even mention caring for baby Max on the trip. When it is meant to be it will be...
ReplyDeleteAnd speaking of such a phrase, the iguilt is real but a feeling you have to kinda move through. We were told that Easton's Eye was 1 in 40,000 births... a third of the cases are due to parental genetics, a third from infection, and a third to chance. We fell in the chance category, lucky us, lucky him?! But obviously it was meant to be... I accept that now. Even through all the hardships of this birth defect, it makes Easton who he is and I love him just the way he is. The way he was meant to be, Eye and all... he's perfect!!! I no longer hold onto that iguilt, but certainly I have had to grow into this perspective.
Welcome new imum, we are here for you! xo
You guys are awesome! Thank you! I just read the comments and it means a lot to me!
ReplyDeleteMelissa, I will email you. I am going through good old regular life stresses that are enough to drive anyone insane. Having to cope with the EYE, as well as everything else, is taking a slow toll. But, the fact that I can now call it the EYE and me an iMum is brilliant :)
Amanda and Missy - I am grateful for your comments! While I do not want the EYE to become the defining feature of our lives, it is humbling to see that you all take things in your stride and have a positive outlook on the whole thing. I am working hard to get where you are!
Lots of love,
iMum
Love this post Melissa. I agree, I could not have done this without the cyber support of all the imoms. This is a challenging thing to deal with and we need all the help we can get! The best part is the "it will get better" that I hear from you guys. I know you are telling me the truth because you are living it.
ReplyDeleteI have accepted that Julia is just Julia, with her EYE and all. But it is hard on a day to day basis, mainly because we are in the midst of a MAJOR patch struggle. I feel more guilt about the patch (and fearing that I am not getting in enough time) than I do about the birth defect. I couldn't control her having a cataract - that was chance. I can control (somewhat) her visual outcome with patching. And that is a hard load to bear.
Wish I could hug all of you in person.