Tuesday, October 16, 2012

EYE think it's time for an update.

Ha ha.

Seriously, where are the EYE posts?? I know you have been wondering this, too.

I cannot believe we have made it to a point in this EYE journey where I have to force myself to do an update on progress/life with an eyepatch. Literally cannot believe it. I feel like we are so far removed from the blubbering/terrified/overwhelmed/exhausted mess that I was for basically the first year of the EYE.

I'm just going to take a moment to pat myself on the back. Way to not cry for a few months, Melissa. Way to go.

Anyway, the patch is still with us,of course. It still consumes our daily lives. It is still the first thing we do every morning, the thing we do about more than anything else during the day. The thing we ask about first thing from Noni, GG, his school or each other. "How was he?" will never mean anything in our world unrelated to the patch. When Brandon asks that I know he doesn't mean how did he eat/sleep/feel/play/read/attack other children. He only means the patch. It is the sun and everything else revolves around it.

I still get a little sad when I get to see his face during bath time because I miss it during the rest of the day. I miss the idea of raising a baby whose face you get to see all of the time. I see blue plastic. If that doesn't sound like a big deal to you then you are not an imom. It is just hard to explain. It is very petty, but it still bothers me.

I still get a bit anxious when I hear kids say, "What's wrong with him? or" Why does that kid only have one eye?" I worry about the days when Anderson is old enough to really understand them. (Mostly I am worried about my reaction. I am serious. I have a small tendency to "respond" to people when they are rude. Just ask Nicole about the rude woman at Chick Fil A. I literally was not involved, but heard her talk to Nicole and was ready to thrown down in the parking lot. I won. She had crunchy hair. But, seriously, I am going to really have to hold back to not lose it on some 6 year old one day.)

I still feel just a bit of tingle when I see Crayon Pirate hanging on my kitchen wall & I realize how this pirate boy was really supposed to be mine all along.

I still worry about the patching not working, of course. That is just a part of it.

However, I no longer think about the patch all day, every day. I don't have to stalk him anymore. If he takes it off in the car I let him. I LET HIM! Did you hear me? This is huge. It is the greatest feeling to know I don't have to freak out and almost wreck trying to keep it on him in the back seat. I just know that will come from his total hours off at the end of the night.

The 4 hours off was huge. I honestly don't know if anything will ever have that much of an impact on the EYE journey as when Dr. Cogen said, 4 hours. The 4 hours has brought me some peace of mind that it is working, it has literally returned my sanity.

My bug continues to amaze me. He truly is an inspiration with his ability to do so much with one eye. Think about what he does with ONE eye. He is a climber, a runner, a tackler, a jumper, etc. He is awesome.

So, that is where we are right now. The patch is very much a part of our daily lives, but so much so that I almost forget about it. Can you believe it?? imoms who have younger kids-IT WILL GET EASIER!! Anderson had to get those first 2 years under his belt and now it is almost routine. Hang in there, the good times are coming your way, too!

11 comments:

  1. I was thinking about the patch on the car ride this weekend - the amount of worry and stress you used to face has definitely decreased since the 4 hour decree (not disappeared - I know it still consumes daily life). But I'm so happy that you can start to relax a little and I'm so glad it's getting easier. He is still a champ when it comes to patching, as are you :)

    p.s. i love that you are willing to throw down in defense of those you love. That woman at Chik Fil A wouldn't have known what hit her :)

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  2. I am so happy that the EYE has become more routine. You seem so accepting and have such peace about it. And definitely give yourself a pat on the back for going several months without crying - a huge accomplishment for an imom. I hope I can post something similar at the two year mark!

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  3. He only means the patch. It is the sun and everything else revolves around it.

    I really like that part.

    I also really like that you are my sister, because you WERE ready to THROW down with crunchy-hair woman.

    I love watching that boy's eye swing around and see everything.

    I CANNOT believe this is a real post. You can literally handle anything. ANYTHING.

    I'm so glad the imoms are finding you!

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    1. one of you better tell me the crunchy haired woman story soon

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  4. God knew what he was doing when he gave Anderson you to eb his mom... He knew that you had the 'determination' to do whatever is necessary for your bug. I love you.

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  5. I am so proud of you Melissa! I cannot begin to express to you what an inspiration you are me and everyone else! Tears actually flowing when I read this.... I know I am a nerd but I am so blessed to have you as a mentor and FRIEND! Love you and hope to see you VERY soon!!!!

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  6. You have come a long way baby! So has your baby! You are over a quarter of the way done with the P-A-T-C-H!

    Crunchy hair! Ha... Love the description. I try very hard to act like I don't hear them. Sometimes though, I look directly at them, wait until I have eye contact, then I tell Austin that some people don't have a filter for their thoughts before they come out of their mouth. Immature? Maybe. Satisfying? Definitely.

    It IS hard to believe, but we are in the "this is out normal life" stage too.

    You go, girl!

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  7. he is totally amazing with what he can do with that one eye. i told you about the time last christmas i had to patch one eye...it was ridiculous how many things i ran into...

    i also like the whole "it is the sun..." please write a book for heaven's sake.

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  8. So happy the patch is not taking over your life! It will all be worth it. You should be the official iMom spokeswoman and give inspirational talks!

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  9. Two years! Crazy. I know Easton and Anderson are not the same age but they/we have been on this journey for roughly the same amount of time. And as I sit and read where you are at TWO years into it all, I can't help but totally relate! The sadness, the anxiety, the worry... yes, it is all still there. BUT it is hard for me to believe that the Eye and all that comes with it is just simply a part of our life. There was a time when I just couldn't imagine this day, but it's here... relatively normal life! Congrats to you both on two years!

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  10. Hi Melissa! I have not had much time to blog and/or keep up with blogs over the past few months. The main reason being that the eye patch has completely consumed my life! Just wanted to let you know that you are truly an inspiration! Congrats on the progress that Anderson has made and also on the new baby! :) I hope that one day in the near future Peyton will start to get good reports from her doctor as well! -Aimee Shaver

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