I could not figure out a title for this post, but I knew I wanted something EYE related and that was the best I could do.
I find myself not really noticing the EYE much anymore. Who knew?
Hear me out, patching is definitely still a huge part of our everyday lives. Anything that involves 12 hours of the day will always fall into that classification, I think. But, after 2 solid years of daily struggling to keep it on, the bad days are very few & far between.
I love, love it here.
And...I would have never known how nice this particular piece of paradise is if we had not been trapped on the sinking island of hell for so long.
That is generally how perspective works, isn't it?
We still have moments where he refuses to cooperate. I think this particular day there was no reason, just" I will NOT wear the eyepatch!"
Most of the time there is a reason and it is usually, "My eyepatch is sweating." Sometimes about 8am he will ask if he can take it off because, "I have had it on ALL day!" I have to break it to him that while it does seem like we have been up all day already, it has been less than 3 hours, so good try, but no luck.
About 6pm each day we have this conversation:
Us: You can take it off...
Anderson: (as he yanks it off) Because I have been so good!
It is a daily ritual and here is how I know that we have made progress: I don't try to save the patches anymore! When we were going through what seemed like hundreds at a time, I could salvage even the most crumpled one, but now I don't even try.
That, my friends, is called progress.
I caught a glimpse of this frame the other day and I was momentarily shocked as I realized what was happening. This has been in our house for 3 years, so it is not new. I actually remember my mom buying it for me at Kirklands when I was pregnant. I love the quote & I love the picture that was captured by Aunt Manda on Anderson's first day here.
We look so confused as we sort of awkwardly lean in to kiss him/stare at him. I think I saw a pic like this somewhere, only it looked much better because the parents weren't terrified of their own kid who might have actually been dressed. But, I digress because none of that matters.
What matters is the precious little LEFT EYE aka Cataraact Eye that is opening just a bit, sort of checking things out. There we are-the whole family posing for the first time: Daddy, Bobble, Anderson & the EYE. We had no idea what was in store for us with the EYE and that precious little 7 lb bundle that was carrying it.
But great love will make it ok. Doesn't it always?
Perhaps I am thinking a bit more about this because I keep thinking about Max & picturing his eyes. Most people probably just wonder about their kid's eye color, not if their lenses will be clear, but imoms are blessed with extra worries:)
This week (27) I read that his eyes are starting to open while he is swimming around in there and I want desperately to see them. Just to know. This was a paragraph in my pregnancy book this week, too!! I imagine myself 3 1/2 years ago totally glossing over this part of the book because who cares about this when there is a comparison to what size vegetable he is on the next page!
But seriously, I am a bit more aware that things can wrong this time around, but I am also even more grateful that this was our "wrong". Since every pregnancy book seems to be focused on the negative things, there are all kinds of statistics that I have read about disorders, random problems, etc.-1 in 88, 1 in 150, 1 in 500 and even 1 in 1000.
Odds of a cataract? 1 in 10,000.
I remember the old me, before I became an imom, thinking how unfair this seemed. This is SO rare and yet, it happened to us. Pity. Party.
Now, with Max on the way, I think how much I would take that statistic over the problems associated with the other ones.
**HEAR ME NOW, jinx gods! I DO NOT WANT A SECOND PEDIATRIC CATARACT KID! I am just making a statement!**
But, really, it is true that we dodged a few bullets with this one.
And, for my last EYE rambling, I share a picture with you that was taken a few weeks ago at Anderson's school. First, the fact that they "learn" sign language is precious, but that is not the focus.
There is no way on earth that my kid did not win the largest gold star around for this objective!




I think that picture is so sweet. I don't see the awkward. I see love and awe. I felt awkward around every new little one God have us. So maybe you are just remembering you're feelings when you see this picture.
ReplyDeleteThis condition rocks a family to the core. But it is such an amazing thing to realize that a core can survive and be strong enough to realize it is alright. We got this.
I seriously cried so hard when I looked in Kyle's eyes and seen two black pupils. I took a breath, I didn't know I had been holding. Doctor after doctor got asked to check with their little red reflex light until the PO cleared him six weeks later.
I seriously love the name Max!
You have managed this do well. You have made new friends and Anderson is so precious and smart. Making lemonade out of lemons is what you have done.
ReplyDeleteYou guys have just done such an amazing job handling this. I am so excited to read your eye posts because you have really come full circle almost. He is beyond beautiful!
ReplyDeleteMax is going to bring his own set of craziness, but I know we are all praying it is not of this nature. I freaked out in my pregnancy with Vi that she would have Apraxia or autism, or really every single thing I read in those horrid pregnancy books. And you know what? She is perfect. Just like Jeremy. Just like Anderson. Just like Max.
I wonder if the teachers picked the right eye because of anderson?
ReplyDeletePLEASE HEAR HER EYE GODS!!!!!!!!!!!!!!!!!! You have been through so much. I seriously can't EVEN imagine doing that everyday. Yes, I'm sure "there are worse things" like you said, but seriously woman, you totally came out a conquerer on this one.
ReplyDeleteI'm glad to hear the other side of patching hell is out there! Thanks for the inspiration! I too remember glossing over the eye pages of the baby books! 1 in 10,000. It's a number I repeat to myself a lot as well, My daughter Ruby had a cataract in her right eye. But she wears a contact - which is it's own set of hell/torture/tears for all of us! I have my fingers crossed for Max's two beautiful and HEALTHY eyes!!
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